For years I have fought hard for my son. I have fought through the obstacles others created and the obstacles of the system itself. I fought to get help for him. And finally, after years of discouragement, exhaustion and seemingly unanswered prayers, God led us to where we are now. We have a TSS (Therapeutic Staff Support) who helps my son at school and helps our family in our home or while we’re out in the community. We’re in a really good place. We are starting to see progress. I thank God every day. I feel HOPE, which was something I struggled to see for more than five years.
But just this week we found out that the services my son receives will be ending in August, at the latest. The agency that provides his services is closing. Talk about devastating! Employees are losing their jobs. Families are losing their support. Kiddos are losing precious time as they struggle through this scary, confusing world and wait out the transitions to new services (which likely has a 6-month to year-long waiting list). Continue reading “When Plans Change” →